Showing posts with label CFS. Show all posts
Showing posts with label CFS. Show all posts

Tuesday, 21 September 2021

TO THE TUNE OF THE DRUGS DONT WORK BY THE VERVE

 


all this time of being ill

its getting me down, my love

like gas in a lamp, waiting to be lit

this time its 'all in my mind'


now the drs dont help

they just makes things worse

but
sure 
i'll
take
their
drugs
again








Saturday, 9 September 2017

A BLACKBERRY 850 IN A TOUCHSCREEN 4G WORLD



with an old mobile
that needs constant recharging
you carry the charger everywhere
stick it in the socket at Pret
or the office desktop

but
what if your charger
is your bedroom ?

and when it starts up again
its sluggish and unresponsive
and the one pale battery bar
feels like a lie

well
what if that phone
is like you at breakfast ?

once it starts up
you know you wont have power for long
so you quickly send a text or two
anxiously watching
to check they actually send

but
what if that's
how you talk ?

it wont cope with streaming media
no oomph left for modern apps
but you can play Snake still
for a little while anyway

but
what if you hate Snake
and Snake is your holiday ?

and the ringer and the alerts
are feeble bleeps
and you wouldn't make 3 minutes
with an actual call

well
what if that call
is your family Xmas ?

you wind the brightness down
you turn off push notification
you take the back off
you pull the battery out
you warm it up on a rad
you leave it in vinegar
and all sorts of other
half-arsed hopeful tricks

well
what if that's your
endocrine system ?
your limbic system ?
your guts ?

and you don't want a new phone
cos its not that old
so you take it to the phone shop
and they say look
put roaming back on
put push alerts back on
put updates back on
they say look
with all that off
it might save you battery time
but you've de-conditioned it
when you should have maintained
and
also
DON'T do ANYTHING with it
you read online

well
what if that's your Dr ?

maybe in the past
you topped up the charge too often
maybe its had a rough run
bouncing about with no case
maybe in pockets with keys and change
and there's all the times
it was left in the sun
at festivals and barbecues
beer splashes wiped away
with a t shirt sleeve

but
what if there's no clear reason
that you can find ?

and you remember all the times
it ran red hot after 5 min calls
and you remember the first day
you took it off charge in the morning
and it was almost dead still
and all your texts were gone
and all your contacts had disappeared
and you knew then
you couldn't depend on it anymore

well
what if that's
your memory ?
your mental agility ?
your lexicon ?

and every time you use it
you got a nasty feeling
you're only making it worse
cos you don't really know
do you ?

well
what if that's you
your body
and
your
life ?




Related image

from wallpaperup.com



Thursday, 3 July 2014

ME/CFS ANALOGY



everyones had a mobile they used for years
the battery aint what it used to be
dont last long
and needs constant recharging
you carry the charger everywhere
sticking it in the socket at work or in Pret
cant depend on it lasting
goes dead often
plug it in the wall again
wait for it to start up again- its sluggish
eventually you see the network providers emblem
and one pale yellow battery bar
once it starts up you know you wont have much power for long
so you quickly send a text or two
anxiously watching to check theyre sent
no chance of facetime
or web surfing
no checking your email let alone streaming media
cant even play Brickbreaker anymore
you know you might miss any texts back
because the ringer and the alerts
are pitifully quiet these days
and you wouldnt make 30 seconds with an actual call
you tried keeping the brightness wound right down too
and taking the back off
pulling the battery out
warming it up
leaving it in vinegar
all sorts of shit on internet forums
but it always dies before it ever loads a page
maybe in the past you topped up the charge too often
never let it run right down to nothing 
like youre supposed to
maybe its had a rough run
bouncing about without a case in the bottom of backpacks
or in pockets with keys and heavy change
theres all the times it was left in the sun
at festivals and barbecues
you hastily wiped beer splashes away with a tshirt sleeve
and you remember all the times it ran red hot
after 30 min calls
you remember the first day you took it off charge in the morning
and
it
was
dead
and knowing then you couldnt depend on it 
outside the house 
or in it
anymore

you admit you need a new phone
but
youre stuck with a Nokia 2110 
with twenty years of use
in
an
iphone5s
world


from wikipedia

Monday, 9 June 2014

ITS ALRIGHT MA, FLOWERS GROW IN SHIT


so
you wake up on the dead side of the moon
and
you recognise it
because you been there before
and
you puke warm bile
every morning at 3 AM
and
your eyes are empty and cold as ice cream scoops
and
youre rammed in your own sweating stink crack
where
theres
no 
time
or
light
till something clicks or cracks forever
inside your deepest guts 
and
you go on a go-slow
and 
never speed up again ever
and
numbers look like egyptian writing 
all wolf heads and square cats
and
they
call it ME or they call it CFS or they call it suck-it-looser
when
you
feel like one of those dog turds
thats got rubber bands hanging from it
linking
up
shit
clumps
in a horrible convoy
and
you end up at 6.45 AM queueing for more blood tests
with
the 
ordinary ogres 
wishing
they
find
you
a
cooler
disease